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Where to Begin

Brain Blindness

Vision is darker. That’s not a rubber mat?

I can see it, but at the same time Ican’t see it

Confusing, disorienting

Good days and foggy days

Frightening

Where to begin?

Which way round does this go?

Things aren’t where they appear to be

I wish you could see through my eyes

Invisible dementia

Misdiagnosed and misunderstood

Getting confused more often

How to describe something

No more words

Which way round does this go?

Why can’t I find things?

I wish you could see what I see

It’s a black hole

I can’t do anything I used to be able to do

Eyes are okay in themselves

No more driving

Staying positive as possible

How to begin?

Why can’t I find things?

Where is the top or the bottom?

When I struggle to understand

Word Searching

Things aren’t where they appear to be

The brain affects the eyes

Emburggerance

No more words

Misunderstood

Where is the top or bottom?

Where is the top or bottom?

Where is the top or the bottom?

Why can’t I find things?

Why can’t I find things?

Where to begin?

Where to Begin

A poem from the Rare Dementia Support Impact Study (2019-23)

Poem Prompt: How would you describe posterior cortical atrophy (PCA) to a friend or family member?

Facilitating Poet: Lawrence Wilson

UK Participants

About Dementia

The Reality of Dementia

The term “dementia” doesn’t actually refer to one specific disease. Rather, it’s an overall term for a set of symptoms that are caused by disorders affecting the brain.

Over 500,000 The number of Canadians living with dementia today.

912,000 The number of Canadians living with dementia in 2030.

76,000 The number of Canadians diagnosed with dementia every year.

65% of those diagnosed with dementia over the age of 65 are women.

1 in 5 Canadians have experience caring for someone living with dementia.

Learn more about Dementia from The Alzheimer Society of Alberta and Northwest Territories.

Community Engagement Partners:

Rare Dementia Support

We are proud to have Rare Dementia Support Canada as our community engagement partner for Bluebeard’s Castle. They have been crucial in sharing knowledge and resources about dementia and rarer forms of dementia. On top of their expert advice, they also have provided a poetry installation for the lobby called “Where to Begin,” which will be present at all performances of Bluebeard’s Castle.

Rare Dementia Support Canada, Community Engagement Partner

Rare Dementia Support Canada is a virtual support community for people affected by rare or young onset from across. Our vision is that anyone in Canada affected by a rarer or young onset dementia diagnosis has access to timely information and advice, tailored and continuous support, and connection with others affected by similar conditions in a space of mutual respect and understanding.

Learn more about “Where to Begin” and see some examples of the poems below.

Our Education Team

Andrew Adridge (He/Him)

Co - Founder of Opera InReach / Artistic Production

Andrew Adridge (he/him) is a multidisciplinary artist and opera producer based in Toronto with a passion for equity and industry reform. He is a graduate of the University of Toronto holding both a Bachelor of Music Performance in Voice and a Master of Music in Opera. He has been featured as an ensemble soloist both at the Four Seasons Centre for the Performing Arts in Toronto and the Kennedy Centre in Washington, D.C. Andrew has participated in several young artist programs including The Chautauqua Institution Voice Program, and the Banff Opera program. Andrew is an avid writer having contributed to both Opera Canada and Ludwig Van Toronto and continues his pursuits through his personal blog and through spoken word bringing to light issues around artistry, identity, and race.
Andrew has worked as an arts administrator with such organizations as the Association for Opera in Canada and Tapestry Opera and has recently made his directorial debut with the Canadian Opera Company and Against the Grain Theatre as the Associate Director on Mozart’s Requiem. Most recently he directed the Edmonton Opera Valentine’s Day Gala which premiered on Global TV in February of 2022. Andrew currently works as the Artistic Producer for the Banff Centre Opera in the 21st Century program and is the Co-Founder of the national arts education collective Opera InReach. Andrew’s recognizable commitment to EDIJA advancement in the arts sector has made him sought after as a panellist, consultant, and outlet contributor.
This season, Andrew will assistant direct Identity: A Song Cycle with Against the Grain Theatre and Carmen with the Canadian Opera Company. Andrew is very excited to continue his journey as an opera producer through this opportunity provided by the Metcalf Foundation allowing him to work in Artistic Operations with Against the Grain Theatre.In the past two years, she has published research on Samuel Coleridge-Taylor, performed at the Canadian Opera Company’s Asian Heritage Month Showcase Series, and led the largest choir in Ottawa’s history entirely digitally. Outside of arts, she currently works with nurse educators across Canada, which is in line with her interest in learning about health equity and nursing education.

To find out more about her work and the Singer’s Laboratory Webinar Series, visit her website (click below).

Saeideh Rajabzadeh (She/Her)

Education & Engagement Consultant

Saeideh Rajabzadeh (she/her) is a Persian-Canadian mezzo-soprano, musicologist, and community builder with a passion to serve and to meaningfully contribute to the conversations of diversity and inclusion through her research and artistic work.
In the past two years, she has published research on Samuel Coleridge-Taylor, performed at the Canadian Opera Company’s Asian Heritage Month Showcase Series, and led the largest choir in Ottawa’s history entirely digitally. Outside of arts, she currently works with nurse educators across Canada, which is in line with her interest in learning about health equity and nursing education.

To find out more about her work and the Singer’s Laboratory Webinar Series, visit her website (click below).

Daevyd Pepper (They/Them)

Co-Founder of Opera InReach / Digital Marketing Manager

Daevyd Pepper (they/them) is a multipdiscplinary artists and operatic tenor based out of Tkraonto.

They are a visionary, creative consultant, menot and artist whose partice centres on community, consent, curiosity, creativity, and social justice.

They perform primarily opera and her known her their rich and robust heldentenor voice.

With their close friend and colleague Andrew Adridge, they cofounded Opera InReach: a collective dedicated to expanding the civic impact of opera.

When they aren't on stage you can find them playing with their cat, tending to their plant, or doing something witchy.

About the Show

A radical retelling conceived by Theatre of Sound

This production of Bluebeard’s Castle was originated by Theatre of Sound: a British arts organization that brings immersive storytelling through drama, music and electronics all in a singular experience.

Their mission is to break down boundaries between genres, utilizing their unique style of storytelling to serve the purpose of their productions, overcoming traditions that separate art forms from audiences. 

Learn more about Theatre of Sound here.

Transporting the story to today!

With a newly-commissioned English libretto and chamber orchestration, Bartók’s masterpiece is transformed into an intimate operatic experience relevant to audiences today.

This new adaptation of Bluebeard’s Castle retells the story through the lens of a family living with dementia and sheds light on the impact of this condition.

Two Sides to Every Story

For our production, we commission Ukrainian Artist Daria Filippova, a fantastic illustration artist. Her work inspired sentimentality in us, which we thought would perfectly capture the use of flashback memories in this piece.

Photographs from the original London production inspired the concept. The images we selected to base the illustrations on capture a clear perspective on the relationship between Judith and Bluebeard and their individual emotional states and struggles.

Education & Engagement

Who is Béla Bartók?

Béla Viktor János Bartók  (1881 – 1945) was a Hungarian composer, pianist, and ethnomusicologist. He is considered to be one of the most significant composers of the 20th century, and he is also regarded as Hungary’s greatest composers.

On top of his contributions to the canon of Western classical music, he was also one of the founding scholars of comparative musicology, which later became ethnomusicology.

The Original Bluebeard’s Castle

Bluebeard’s Castle/A kékszakállú herceg vára (composed and revised between 1911-1917) is a one-act expressionist opera by Béla Bartók. The original libretto was written in Hungarian by Béla Balázs, a poet and friend of the composer, and is written in Hungarian, based on the French literary tale La Barbe bleue by Charles Perrault. The story centres on only two characters: Bluebeard and his new wife Judith; the two have just eloped, and Judith is coming home to Bluebeard’s castle for the first time. 

Mental Health Support

Whether or not you are connected to somebody with a severe or chronic condition or know/care for someone with dementia like Bluebeard, mental health is a top priority.

Check out the resources below for mental health support.

Social Media  

Please keep in touch and follow all our partners on social media!