Brain Blindness
Vision is darker. That’s not a rubber mat?
I can see it, but at the same time Ican’t see it
Confusing, disorienting
Good days and foggy days
Frightening
Where to begin?
Which way round does this go?
Things aren’t where they appear to be
I wish you could see through my eyes
Invisible dementia
Misdiagnosed and misunderstood
Getting confused more often
How to describe something
No more words
Which way round does this go?
Why can’t I find things?
I wish you could see what I see
It’s a black hole
I can’t do anything I used to be able to do
Eyes are okay in themselves
No more driving
Staying positive as possible
How to begin?
Why can’t I find things?
Where is the top or the bottom?
When I struggle to understand
Word Searching
Things aren’t where they appear to be
The brain affects the eyes
Emburggerance
No more words
Misunderstood
Where is the top or bottom?
Where is the top or bottom?
Where is the top or the bottom?
Why can’t I find things?
Why can’t I find things?
Where to begin?
Where to Begin
A poem from the Rare Dementia Support Impact Study (2019-23)
Poem Prompt: How would you describe posterior cortical atrophy (PCA) to a friend or family member?
Facilitating Poet: Lawrence Wilson
UK Participants
About Dementia
The Reality of Dementia
The term “dementia” doesn’t actually refer to one specific disease. Rather, it’s an overall term for a set of symptoms that are caused by disorders affecting the brain.
Over 500,000 The number of Canadians living with dementia today.
912,000 The number of Canadians living with dementia in 2030.
76,000 The number of Canadians diagnosed with dementia every year.
65% of those diagnosed with dementia over the age of 65 are women.
1 in 5 Canadians have experience caring for someone living with dementia.
Learn more about Dementia from The Alzheimer Society of Alberta and Northwest Territories.
Community Engagement Partners:
Rare Dementia Support
We are proud to have Rare Dementia Support Canada as our community engagement partner for Bluebeard’s Castle. They have been crucial in sharing knowledge and resources about dementia and rarer forms of dementia. On top of their expert advice, they also have provided a poetry installation for the lobby called “Where to Begin,” which will be present at all performances of Bluebeard’s Castle.
Rare Dementia Support Canada, Community Engagement Partner
Rare Dementia Support Canada is a virtual support community for people affected by rare or young onset from across. Our vision is that anyone in Canada affected by a rarer or young onset dementia diagnosis has access to timely information and advice, tailored and continuous support, and connection with others affected by similar conditions in a space of mutual respect and understanding.
Learn more about “Where to Begin” and see some examples of the poems below.
Our Education Team
Andrew has worked as an arts administrator with such organizations as the Association for Opera in Canada and Tapestry Opera and has recently made his directorial debut with the Canadian Opera Company and Against the Grain Theatre as the Associate Director on Mozart’s Requiem. Most recently he directed the Edmonton Opera Valentine’s Day Gala which premiered on Global TV in February of 2022. Andrew currently works as the Artistic Producer for the Banff Centre Opera in the 21st Century program and is the Co-Founder of the national arts education collective Opera InReach. Andrew’s recognizable commitment to EDIJA advancement in the arts sector has made him sought after as a panellist, consultant, and outlet contributor.
This season, Andrew will assistant direct Identity: A Song Cycle with Against the Grain Theatre and Carmen with the Canadian Opera Company. Andrew is very excited to continue his journey as an opera producer through this opportunity provided by the Metcalf Foundation allowing him to work in Artistic Operations with Against the Grain Theatre.In the past two years, she has published research on Samuel Coleridge-Taylor, performed at the Canadian Opera Company’s Asian Heritage Month Showcase Series, and led the largest choir in Ottawa’s history entirely digitally. Outside of arts, she currently works with nurse educators across Canada, which is in line with her interest in learning about health equity and nursing education.
To find out more about her work and the Singer’s Laboratory Webinar Series, visit her website (click below).
In the past two years, she has published research on Samuel Coleridge-Taylor, performed at the Canadian Opera Company’s Asian Heritage Month Showcase Series, and led the largest choir in Ottawa’s history entirely digitally. Outside of arts, she currently works with nurse educators across Canada, which is in line with her interest in learning about health equity and nursing education.
To find out more about her work and the Singer’s Laboratory Webinar Series, visit her website (click below).
They are a visionary, creative consultant, menot and artist whose partice centres on community, consent, curiosity, creativity, and social justice.
They perform primarily opera and her known her their rich and robust heldentenor voice.
With their close friend and colleague Andrew Adridge, they cofounded Opera InReach: a collective dedicated to expanding the civic impact of opera.
When they aren't on stage you can find them playing with their cat, tending to their plant, or doing something witchy.
About the Show
A radical retelling conceived by Theatre of Sound
This production of Bluebeard’s Castle was originated by Theatre of Sound: a British arts organization that brings immersive storytelling through drama, music and electronics all in a singular experience.
Their mission is to break down boundaries between genres, utilizing their unique style of storytelling to serve the purpose of their productions, overcoming traditions that separate art forms from audiences.
Learn more about Theatre of Sound here.
Transporting the story to today!
With a newly-commissioned English libretto and chamber orchestration, Bartók’s masterpiece is transformed into an intimate operatic experience relevant to audiences today.
This new adaptation of Bluebeard’s Castle retells the story through the lens of a family living with dementia and sheds light on the impact of this condition.
Two Sides to Every Story
For our production, we commission Ukrainian Artist Daria Filippova, a fantastic illustration artist. Her work inspired sentimentality in us, which we thought would perfectly capture the use of flashback memories in this piece.
Photographs from the original London production inspired the concept. The images we selected to base the illustrations on capture a clear perspective on the relationship between Judith and Bluebeard and their individual emotional states and struggles.
Education & Engagement
Who is Béla Bartók?
Béla Viktor János Bartók (1881 – 1945) was a Hungarian composer, pianist, and ethnomusicologist. He is considered to be one of the most significant composers of the 20th century, and he is also regarded as Hungary’s greatest composers.
On top of his contributions to the canon of Western classical music, he was also one of the founding scholars of comparative musicology, which later became ethnomusicology.
The Original Bluebeard’s Castle
Bluebeard’s Castle/A kékszakállú herceg vára (composed and revised between 1911-1917) is a one-act expressionist opera by Béla Bartók. The original libretto was written in Hungarian by Béla Balázs, a poet and friend of the composer, and is written in Hungarian, based on the French literary tale La Barbe bleue by Charles Perrault. The story centres on only two characters: Bluebeard and his new wife Judith; the two have just eloped, and Judith is coming home to Bluebeard’s castle for the first time.
About Dementia
Below are some additional resources for learning about dementia in all its forms. Further study, interesting facts, and organizations you can donate to, are all found below.
- Rare Dementia Support Canada
- The Alzheimer Society of Canada
- Alzheimer’s and Dementia in Canada
- The Association for Frontotemporal Degenration
- Halton-Peel Community Aphasia Programs
- The Dementia Society
- Government of Canada on dementia
- Dementia Information For Indigenous Peoples
- Native Women’s Association of Canada
- Canaddian Remote Access for Dementia Learning Experience
About Caregivers
Below are some additional resourcse for caregivers of those living with dementia.
Mental Health Support
Whether or not you are connected to somebody with a severe or chronic condition or know/care for someone with dementia like Bluebeard, mental health is a top priority.
Check out the resources below for mental health support.
Social Media
Please keep in touch and follow all our partners on social media!